Research Data Management

A data sharing agreement is an agreement between two or more parties that outlines which data will be shared and, most importantly, how the data can be used. A data sharing agreement can prevent data misuse, data abuse, and unregulated data dissemination.

The typical items found in a data sharing agreement are the period of time the data is to be available, the intended use, confidentiality and security information, usage constraints, details on confidentiality requirements, and financial costs.

Source:

National Center for Advancing Translational Sciences (NCATS). (n.d.). Data sharing agreement. Retrieved December 16, 2024, from https://toolkit.ncats.nih.gov/glossary/data-sharing-agreement/

• Framework for a Data Sharing Agreement (Alberta First Nations Information Governance Centre)

  The Alberta First Nations Information Governance Centre provides template language for an agreement and key factors to consider.

• Guidance on Preparing Information Sharing Agreements Involving Personal Information

  This guidance by the Treasury Board of Canada Secretariat provides a framework to help organizations develop agreements that ensure the responsible and lawful sharing of personal information.

• NWT CIMP Traditional Knowledge Sharing Agreement Template

A Traditional Knowledge Data-Sharing Agreement Sample Template developed by NWT's Cumulative Impact Monitoring Program (CIMP)

• Information Sharing Agreement Template (Central Coast Indigenous Resource Alliance)

The document could be used for entering into a collaborative process, joint decision-making process or a one off project with a Crown agency. It does not constitute legal advice but rather provides wording on the necessary elements of an agreement such as preliminary recitals ("whereas"), authorized users, limitations on use, ownership of information, and disclosing to third parties.

• Data Sharing Agreement Template (Assembly of First Nations Quebec and Labrador- AFNQL)

This document is meant to serve as a handbook, not only for First Nations, communities and regional organizations, but also indirectly for the scientific community, in order to establish rules for research activities carried out with First Nations or on their territory. The data-sharing agreement template can be found in Appendix 2.

• Data Sharing Agreement (Urban Indigenous Health Database Project)

A tri-party data sharing agreement negotiated between the Institute of Clinical and Evaluative Service, the OHC Governing Council (OFIFC, MNO, ONWA and TI) and the CRICH at St Michael’s Hospital. Learn more about this project and key findings here.

• Data Sharing - Data Governance & Management Toolkit